I have definitely strayed off topic of CHS in this thread being that's not what I have going on apparently a misdiagnosis which I had assumed from the start but had to play along with the system to continue to get help.
I kina think it is one of those Catch All diagnosis...if everything else is ruled out...blame that because you are at the limit of our understanding...
They have already talked about a pain clinic with spinal injections and those suck!
Radio pulse frequency or Botox.....?...
It's kinda odd to say...a very personal opinion...I had a year of treatment in the best hand hospital in the UK.
I watched people come in with much worse.. gruesome hand injuries come in and get well and leave treatment...I didn't.
I was in agony. Nerve damage will never be cured by physio..it makes it worse.
They tried to sign me off after the 12 months...I told them I couldn't be left like that I wanted it amputated.
They said well transfer you to the pain management clinic....and I really didn't want to go because I didn't want to manage the pain..I wanted it to stop.
But...I got my diagnosis there...and that was really where my journey started.. because I had a diagnosis...I had something I could work on...take a bit of power back.
I'd never really heard of anything that could give you pain levels like it...I actually thought I was going mad...so getting the diagnosis where I could see other people were suffering the same was one of the biggest reliefs...it wasn't me...
I cried all the way home. Not crying like sobbing and heaving...just tears ran down my face that I couldn't stop..with sheer relief that someone told me what I had.
I couldn't explain that relief...came from my soul.
That is why I think going to the pain management clinic is probably a good idea for anyone suffering any form of relentless pain.
They can diagnose...and you need a diagnosis.
